Members of PerMaTa, an Indonesian organization of persons affected by leprosy, carry out door-to-door visits in South Sulawesi Province to deliver leaflets on COVID-19, soap and masks.
Sasakawa Leprosy (Hansen’s Disease) Initiative will launch a US$340,000 grant program on November 1 to support communities of persons affected by leprosy around the world that have been hard hit by the effects of the novel coronavirus. Through the program, which will be implemented by organizations of persons affected by leprosy themselves, Sasakawa Leprosy (Hansen’s Disease) Initiative aims to strengthen the capacity of these organizations to address the many issues that persons affected by leprosy face, while providing their communities with essential support during the COVID-19 pandemic.
Twenty-two (22) organizations from 14 countries (see below) have been selected to receive grants following a review of applications received. The program, which is based on the results of pilot projects conducted from May to September this year in Indonesia, Bangladesh and Nepal, will be implemented based on the following four pillars:
The Four Pillars of the New Grant Program
1. Responding directly to community needs
- Distributing food, medicine and other relief supplies, and small loans for livelihood security
- Providing supplies necessary to continue academic studies and for self-care activities
- Advising on how to protect against the novel coronavirus, and giving information on leprosy
- Creating a hotline to serve persons affected by leprosy, and offering counselling
2. Advocating with government
- Ensuring that persons affected by leprosy have access to existing government support schemes
- Requesting additional measures to address current difficulties that persons affected by leprosy are facing amid the coronavirus pandemic
3. Disseminating information
- Publicizing activities through SNS and other channels to increase organization’s visibility, attract new supporters and strengthen PR capabilities
4. Enhancing capacity through training
- Participating in courses on fund-raising, crowd-funding, social business, etc., in order to enhance the sustainability of the organization
Program period: November 1, 2020 – October 31, 2021 or November 1, 2020 – February 28, 2021.
Program scale: 22 organizations (22 projects) / Total funding US$ 340,000
Commenting on the new grant program, WHO Goodwill Ambassador for Leprosy Elimination Yohei Sasakawa said: “Finding solutions to the issues that persons affected by leprosy have to confront requires their voices to be heard. It is important that their organizations become increasingly vocal and active. We hope this grant program will help address the difficulties their communities are currently facing during the coronavirus pandemic and provide a stepping stone toward the sustainability of their organizations.”
Grants issued on the basis that organizations are supported in their activities by an NGO partner.
For more information on the grant program, see www.shf.or.jp/information/9375?lang=en.
Webinar Series on Leprosy (Hansen’s Disease)
Sasakawa Leprosy (Hansen’s Disease) Initiative is hosting a series of webinars on leprosy, beginning on Friday, October 30. The first webinar is titled: “Schemes to support organizations of persons affected by leprosy during the coronavirus pandemic and their significance” (www.shf.or.jp/information/9552?lang=en) For more information about this and future webinars, and for details on how to participate, see www.shf.or.jp/other_activities/webinars?lang=en.
About Leprosy (Hansen’s Disease)
Leprosy (Hansen’s disease) is a chronic infectious disease that mainly affects the skin, peripheral nerves and eyes. Over 200,000 new cases are reported worldwide each year. The disease is completely curable, but if treatment is delayed or interrupted, progressive nerve damage can lead to muscle weakness, numbness in the hands and feet, and cause severe disabilities and blindness. Because of deep-rooted misconceptions about the disease, millions of people continue to experience discrimination because they or a family member have or once had leprosy. This can affect their opportunities for education, employment and marriage, and limit their participation in community life.
About Sasakawa Leprosy (Hansen’s Disease) Initiative
Sasakawa Leprosy (Hansen’s Disease) Initiative is a strategic alliance between the Sasakawa Health Foundation, The Nippon Foundation and WHO Goodwill Ambassador for Leprosy Elimination Yohei Sasakawa for the purpose of achieving a world without leprosy. The Nippon Foundation (founded in 1962) and Sasakawa Health Foundation (founded in 1974) have been actively involved in initiatives against the disease for over 45 years. The chairman of The Nippon Foundation is Yohei Sasakawa.